Wyatt Fuller's Journal » Crohns Disease

Start of a new year and a recap.

Wyatt Fuller — Sat, 02 Jan 2010 04:10:28 +0000

So this year I have decided to take part in Project 52. At least one new blog post a week. With that in mind here we go.

I have a few things that I want to accomplish this year.

Finish scanning in all the family photos.
Scan all my wedding photos
Fix up our front and back yards including putting up a fence for the girls.
Learn a new programming language which will be determined later
Get Healthy

The last one is the most important. Right now I’m still having some issues with the Crohn’s Disease which has made my life pretty miserable. I’m on Humira right now and it seems to be working but there are a few side effects. The major one is that I have no immune system. If someone sneezes near me I get a cold, this has led me to being sick all the time. I’m really hoping this is the year that everything changes.

The other goals are pretty self-explanatory. I have been really slackass on scanning photos and I plan on spending at least one hour a day getting them all scanned and putting them on fullerfarm.net. I have pretty much finished the Fuller family genealogy as there is no way to get past Ezekiel Fuller (1650-1723) as all records are gone. I am working on the Chamblin side next.

I want to learn a new language to improve my skill-set.

Now the main focus of my blog will be me dealing with Crohn’s and dealing with our dogs Percy, Luna, and Soleil.

Life with three English Mastiffs is always interesting. Percy is out 10 year old male who rules the house. Luna and Soleil are our 6 month old girls. I’m not sure if my house, car, bank account, furniture, bones will survive.

So stick around and check back at least once a week and join me as I try to document a year in my life.

I’m still rubbish at posting

Wyatt Fuller — Wed, 17 Jun 2009 03:01:49 +0000

The Humira seems to be working. I’m feeling better but my gallbladder is giving me trouble. The pain is incredible and very annoying. I’m hoping to get rid of it soon. I am going to try to get back on my posting schedule.

What a week

Wyatt Fuller — Sat, 06 Jun 2009 02:31:33 +0000

I think the Humira is working. I have had a pretty good week. Very little abdominal pain but a lot of gallbladder pain. I did get off the Pentasa this week so that makes me happy.

Here’s hoping that this next week will be just as good

My 2nd Wedding Anniversary

Wyatt Fuller — Wed, 03 Jun 2009 03:09:42 +0000

Today was a good day. The only thing that went wrong was the gallbladder pains which weren’t that bad. I got paid finally and was able to buy Jenni an anniversary gift. I got her a netbook which will be here friday. Viva la Amazon!

At my doctor appointment today I was able to get off the Pentasa. I am now only on potassium, Imuran, and Nexium. Dr. Chaudhary wants to wait another month before we remove the gallbladder so that the Humira will have the Crohns under control.

All in all it was a good day.

I don’t like Mondays

Wyatt Fuller — Tue, 02 Jun 2009 03:31:57 +0000

Today was uneventful. I went to see Dr Jester who is my primary care physician. He had blood drawn to check my potassium and vitamin d levels. While drawing my blood the nurse missed my vein twice. This is high on my list of things that suck. Tomorrow I go to see Dr Chaudhary and we will be talking about my latest round of test results and hopefully when we will remove my gallbladder.

Another one bites the dust

Wyatt Fuller — Mon, 01 Jun 2009 02:06:08 +0000

Today was a relaxing day. I spent the morning watching TV and playing zelda, I even got in a nap. The only eventful thing I did today was go to little David’s wedding. It was a very nice ceremony and I hope the two of them will be happy. Now I am watching the old V mini-series. Total nerdvana.

I’m feeling ok today just really tired. I still have the rash at the injection site but it seems to have cleared up a little. Tomorrow I have an appointment with my PCP. It’s just a checkup so there shouldn’t be much to report.

It’s been a very emotional week

Wyatt Fuller — Sat, 30 May 2009 13:40:23 +0000

My buddy Jim lost his daughter last sunday. I can’t even imagine what he is going through but I’m just going to be here for him and his wife when they need me.

I did my second round of Humira shots wednesday. No problem there except I now have a rash around the injection area that itches like crazy. I called the nurses about it and was told to put ice on it. I will get it checked out at my doctor appointments on monday and tuesday.

Yesterday I had a sonogram done. Didn’t show much just a bunch of gallstones. My gallbladder is causing me so much pain I really want to get it yanked out.

Today is Palmer’s birthday party at lunchtime. Adam spent the night so that he could go with us there. Tonight is Amanda & Freddy’s wedding shower for the whole family. It’s going to be a really busy day.

a lazy memorial day

Wyatt Fuller — Tue, 26 May 2009 03:28:21 +0000

Today was quite possibly be the laziest day ever. I slept in late, played the wii, and napped all day. The most strenuous thing I did today was go to the grocery store with Jenni. As far as how I am feeling I hurt today in my hip and elbow. The abdominal pain was there but it was less than yesterday. Hopefully this trend will continue.

After dinner tonight my stomach is upset and making all kinds of noises. I really want it to settle down and let me get some sleep tonight.

Today was a pretty good day

Wyatt Fuller — Mon, 25 May 2009 03:28:26 +0000

I had a pretty good day. The pains are still there but they were just less frequent today. The only part that was bad is that I slipped on a Percy toy and fell pretty hard. Thanks to painkillers I was able to help Jenni clean up and enjoy our friends company.
Unfortunately the pks are wearing off and my hip is killing me. I’m going to stay awake a little longer and take another dose and try to get some sleep. Tomorrow will be one long day of rest.

Today was an easy day

Wyatt Fuller — Sat, 23 May 2009 03:58:57 +0000

I was still having the abdominal pain today so I decided to relax. Mission accomplished. During my nap the nurse did call about scheduling my sonogram. I will have to call them back tuesday and schedule it for next week.

In other news I found out today that my buddy Jim in now a patient of Dr. Chaudhary. Augusta is a small town.

What a day

Wyatt Fuller — Fri, 22 May 2009 04:00:04 +0000

I went to the doctor today. He sent me off to get some blood work done and has scheduled me for a sonogram to check my gallbladder. Dr Chaudhary is worried that my gallbladder is inflamed and this is why I have been having alot of pain. I took it easy and tried to relax and stay comfortable which wasn’t easy. Is it bad when your doctor tells you his vacation schedule and gives you his cell phone number “just in case”?

update for today

Wyatt Fuller — Thu, 21 May 2009 00:23:00 +0000

I took it really easy today. I watched a few movies and napped on the couch. I did call my doctor and setup an appointment for tomorrow morning. Hopefully we can figure something out that will help relieve the symptoms. Wish me luck.

It’s been a bad day & happy birthday Adam

Wyatt Fuller — Wed, 20 May 2009 03:23:17 +0000

I have had a really bad day today. The flareup has gotten worse. I called my doc and made an appointment for friday to get checked out. I just took it easy today and hoped that things would get better.

On another note today was my nephew Adams 9th birthday. Time is flying by so fast.

Crohns Disease wins again

Wyatt Fuller — Tue, 19 May 2009 00:48:59 +0000

I started the day off feeling pretty good. I felt so good in fact that I ran a few errands that I have been putting off for weeks. I got home around lunch time and crashed. I couldn’t believe it. I went from top of the world to complete shit in seconds. At 1 I decided to take a nap and see if I felt better. Luckily I woke up in just enough time to go pick Jenni up and not be late. What a day

I’m having the abdominal pains pretty bad today on top of all the other symptoms. No matter what I feel like in the morning I will be calling Dr. Chaudhary and setting up an appointment.

Also I’m trying really hard to convince Jenni that I need Punch-Out for the Wii. Please help. Tell her I need it.

I hate Crohns Disease

Wyatt Fuller — Mon, 18 May 2009 02:43:37 +0000

This has been a bad flareup so far. I stayed on the couch all day with Jenni. The worst part is that I am completely exhausted. I hate this.

Saturday May 16, 2009

Wyatt Fuller — Sun, 17 May 2009 03:37:41 +0000

Much like yesterday I did not do much today as I’m in the middle of a pretty bad flareup. Very minor abdominal pain but bad nausea. Every time I eat something I feel worse. Days like today are when I hate having Crohn’s Disease.

Friday May 15, 2009

Wyatt Fuller — Fri, 15 May 2009 22:13:47 +0000

Today started off really bad. I wound up taking the laptop upstairs, streaming netflix, and laying in bed all day. I was feeling a little better by the time Jenni got home but not by much. I have the feeling this is going to be bad for a few days.

Day 2

Wyatt Fuller — Thu, 14 May 2009 18:40:06 +0000

Woke up this morning feeling better than last night even though I am having a mild flareup. Other than that not much to report at this time.

Other than some mild abdominal cramping and gallbladder pains today was an ok day.

Humira vs Crohns Disease Day 1

Wyatt Fuller — Thu, 14 May 2009 00:51:56 +0000

Today I started taking Humira for my Crohns. My doctor is hoping that this will do the trick and get my flareups under control. I’m even in a quality of life study to see how well Humira helps Crohns patients. I’m still taking the Pentasa and Imuran for right now but hopefully will be off them soon, possibly in the next month or so.

I’m using the pen delivery method. It’s really simple, take the caps off and “push the button Frank”. It’s almost painless but you are a bit sore after the injection due to the thickness of the Humira. My first dose was four shots and I felt some side effects very quickly. I got really dizzy and nauseous but was told that was normal since I had just taken two months worth of the medicine at one time. In two weeks I will take two more shots and one shot every two weeks after that.

One of the great side effects of me taking Humira is that it will also help my arthritis. Now this is something I am really looking forward to. Being able to move around painlessly is unbelievable to me. I think I am more excited about this possibility than I anything else.

I’ll be using this blog to keep track of my progress so check back if you are interested on how things are going. Below is a picture of me giving myself the first injection. I tried to get a video of it but the file was corrupted. Next time I will get one.

My first Humira injection

Day 1
Feeling sick even before I took the shots. I think I starting to have another flareup.